Harry Houdini (who never did a cheap trick)
Before I get started on the Cheap Tricks, here are my...
TOP 5 THINGS TO DO - (FOR NEWLY DIAGNOSED FMSers)
- Find a good rheumatologist or other skilled physician who treats Fibromyalgia aggressively. Do this
by checking with your local chapter of the Arthritis Foundation and/or the Fibromyalgia Network in Tuczon, Arizona Tel: 800-853-2929. No matter how you came to find this doctor, please interview him/her on the phone or in person regarding if and how they treat fibromyalgia before you make an exam appointment.
- Work with your physician to first get your sleep disorder under control. Yes, that's right, you get a sleep disorder with Fibromyalgia (aren't we lucky?!).
Much of what you may be feeling may stem from and/or be made worse by your disrupted sleep;
pain, depression, anxiety, irritability, fatigue, concentration and memory problems. If you're a person who has never had
to take medication for anything, you MAY have to open your mind to this possibility. I am not suggesting that the only way you're going to get through this is with medication, just that to keep an open mind in this regard. Personally, I take Trazodone (Deseryl) - this is not a traditional "sleeping pill". It is actually an anti-depressant with the side effect of drowsiness. I take a very small dose, same as I've done for the past eight years. The sleep disorder is the Big One, ok? Being able to sleep, even if you're not getting Delta Stage sleep, will have an enormous effect on your ability to deal with this illness. You will be able to make
good decisions about the rest of your care once you are sleeping as best you can. This is very important!
- Get a book about FMS. I recommend Fibromyalgia & Chronic Myofascial Pain
Syndrome - A Survival Manual, Second Edition by Devin Starlanyl, M.D. and Mary Ellen Copeland,
M.S., M.A. (see my FMS Bookshelf page on how to get it). If you own one book on FMS/CMP
this is the one to have. Especially if you have the "double whammy" of FMS/CMP, you MUST own this book. For $19.95 you will get such invaluable information that I literally have not found anywhere else. It really is a guide for living with FMS/CMP, in all aspects of life. It also includes current research info and especially good insights into dealing with your medical team. Familiarize yourself with your illness so that you can talk with your doctors in an informed manner. I've found that if the doc knows that you know what you're talking about, you don't get the brush-off so easily.
- Find a support group. Check with the Arthritis Foundation, check on the FMS
newsgroup on the Internet, call your local hospital and ask if they sponsor any
support groups on FMS or chronic pain.
- If at all humanly possible, do not make any major life changes at this time. Stay
put, stay still, stay quiet - until your FMS is under the best control it can be. This is
not the time to start divorce proceedings, quit your job, or move across country. The FMS,
especially the sleep disorder symptom, may be causing things like personality changes
and/or depression and your thinking may be distorted or perhaps you cannot concentrate on
thinking at all. If you choose to start divorce proceedings, quit your job or move across country, etc.
at a later time, hopefully you will be doing so with a much clearer head.
OK, now the CHEAP TRICKS...
- Get an eggcrate mattress cover at your local department store.
Really helps you sleep better when a regular mattress feels like you're
lying on a marble slab. About $35.00.
- Trade massages with a friend. No cost, fun and relaxing. What? No
friends? Go to a local massage therapy school and have the more advanced
students work on you. Usually low or no cost. Make friends with a massage therapist, if you can find one locally, and barter child care, web design, bookkeeping, or whatever you do, for massage therapy.
- Stretch every day. Stretch before you even get out of bed. Do what feels good to your body but go very easy the first few days. Or get a good video like Stretching Made Easy One Day At A Time, available at Amazon.com.
- Get a Brita water filtration pitcher instead of bottled water. (I
can't lift those giant bottles of water anyway). Questionable things are
in our water supply. About $25.00
- Go to your local essential oils for aromatherapy provider. For the
following conditions, put a few drops of suggested oils on a cotton puff
and place in room:
(WARNINGS! Please consult an aromatherapist before using ANY oil if you are pregnant or have high blood pressure, epilepsy, severe allergic
responses or asthma. Never apply essential oils directly onto the skin - always
combine with base oil. Avoid accidental ingestion - Keep out of reach of children
and pets!)
- Environmental Stress (fluorescent light, ringing phones) - use
cedarwood, chamomile or bergamot.
- Mental Stress (finances, unemployment, taking exams) - use patchouli,
lavender or sandalwood.
- Emotional Stress (grief, guilt, relationship problems) - use sandalwood,
rose or cardamom.
- Chemical Stress (inhaling smoke, overdoing caffeine, food or alcohol, pollution) -
use lemon, patchouli or rosemary.
- Physical Stress (overdoing exercise, driving long distances, fatigue) -
use chamomile, lavender or geranium.
- All the above are cost less than most prescription drugs. They really work, are not addicting and smell great, too. If
you need to leave your home while under any of these stressors, put a few drops
on a tissue or handkerchief and casually sniff it from time to time. Make your
own body oil by using 10+ drops in an ounce of base oil such as sweet almond oil.
The oils mentioned here are approx. $5.00-25.00 per 1/3 oz. Rose is one of the
more expensive essential oils. My resource for oils is AROMALAND. Call and get their beautiful
catalog. My opinion is that their oils are the purest I've found. They are
effective and pleasant to use and do not cause an allergic reaction in an
environmentally sensitive person like me.
- Another good resource for pure products made from essential oils is V'TAE,
41A Commercial St., Nevada City, CA - tel: 800-643-3011. Or visit their website V'Tae. They use pure, distilled
water from Nevada County and very small amounts of alcohol (made from corn) in their products. I
swear by their "Stress Relief Water" and "Sleep Soother Smelling Salts" (these work so well, I may
eventually be able to stop the sleeping meds!). I think I have never smelled anything as
beautiful as their "Sensuality Water". When you're feeling icky, it's always nice to at least smell good. These products really work, are extremely
pure, the company is owned and operated by women, and their packaging is made at
a sheltered workshop by disabled individuals. All 'round, worthy of a call or visit.
- You are obviously on the Internet, so go to the Fibromyalgia Newsgroup (hello FMily!) and get your daily dose of support,
interesting ideas and questions. My opinion is that this is the one best thing you can
do for yourself if you have FMS/MPS/CFIDS. Contribute yourself and you will raise your
endorphin levels by helping someone else. Eliminates the isolation FMS can cause. Cost involved is basically your time.
I found these great medicated patches in my local herb shop (try your
nearest big city's Chinatown district). They are called "JAKO - Medicated Bone
Strengthening Plasters". They are incredible! Slap one on and that pesky shoulder
and neck pain, especially, disappears. Price (in San Francisco) is $1.00 for 5
patches! (Note: Sorry, I don't know of any catalogs or other outlets that carry the JAKOs.) Also try Salonpas patches. I think they work as well as the JAKOs and are a little more gentle on sensitive skin. You can get them at Walgreen's and Long's Drugs or ask your local pharmacist.
giving your money to doctors who do not/
can not/will not understand and treat your Fibromyalgia. Always confirm that a new
doctor treats/understands/is up-to-date on Fibromyalgia BEFORE you make an
appointment with her/him. Any decent doctor will give a potential new patient a 5-10
minute consult on the phone (or in person) without charge. Ask the doctor what his/her
definition of Fibromyalgia is. If you hear things like "wastebasket diagnosis",
"psychosomatic", "hypochondriac", "patient is usually just depressed", or "how do you
spell that?" you know that you need to keep looking. Call the Fibromyalgia Network or
The Arthritis Foundation (see my FMS Bookshelf page) to get names of GOOD doctors in your area that treat Fibromyalgia. They ARE out there, it just takes some searching on your part. Potential to save $1000s. Better yet, email FibroBetsy (see below).
Betsy (kindness@fibrobetsy.com) recommends only patient-referred, fibro-literate doctors. She needs to know exactly where you live. If yours is a small town, DO give her the names of other nearby larger cities or towns. You'll also receive along with doctors' names, a bunch of FMS info including a short resource list, a treatment modality list, abstracts from some major MDs, and a list of coping strategies.
She welcomes names of doctors but only if they're patient-recommended, and she only needs their full names and degrees, phone numbers and city or town they're in. If you have time to add a few comments about the doctor, terrific, but this is optional.
Also, Betsy is so swamped with emails, that she automatically deletes any group emails no matter what the subject is, so please omit putting her email address on these group emails or "forwards" (and mine, too...thanks!)
Try some of the tricks in
Penn & Teller's book "How to Play With Your Food".You'll be laughing before you
know it and will forget all about your pain. (Note: If you are at all shaky today,
please leave the "Stabbing a Fork Into Your Eye" trick for a day when you're feeling
better. Instead, try some of the card tricks so you don't get hurt.) About $20.00
in bookstores for hours of tricky fun! Or, for some real endorphin boosting, pick up
a copy of the movie Penn & Teller Get Killed and you'll get a real look at these
bad boys' twisted, diabolical and excrutiatingly funny minds. Pick up their newest book "How to Play in Traffic" for more laughs when you're feeling down.

You know those times when nothing is working? - not the pain meds, the heating pad, the ice pack, your significant other's massages, etc.? That's the time to break out the movies and books and try distracting yourself from your pain. I'm telling you, it works! I tape the "The Osbournes" and, when things get really bad and I'm totally strung out with the pain and ready to hurl the medicine bottles against the wall and cry hysterically from the frustration of it all, I just slap one of the tapes in the vcr and get lost in Ozzy's family for a while. (Sometimes crying hysterically and hurling things around helps, too; but keep it to a minimum or you'll scare people. Also, this tactic should only be done in the privacy of one's home - do not attempt this at work.) I also have a stash of vintage Jerry Lewis movies, the master of physical comedy and the pantomime, that not only make me laugh, but also transport me back to the 50s and 60s, when life seemed so much simpler. Good choices are The Errand Boy, The Bellboy, and The (original) Nutty Professor.
Speaking of laughing and movies, you can also take your pick of any of Jim Carrey's movies, and just laugh yourself
sick, or un-sick, I should say. In my opinion, he is the funniest man alive and real easy on the eyes, if you know what I mean. There was a time
when watching "Ace Ventura, Pet Detective" was the only thing that helped me out of a major
depressive slump. A dose of Jimmy-Gene beats Zoloft any day of the week! Check out my links to some great Jim Carrey Web sites on my Cool Things I Like page
and catch a few movie wavs to brighten up your day. OK, OK, I'm a HUGE fan! Allllrightythen!!!
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